PBS
Presents "This Emotional Life."
Asperger's Segment Included
This Emotional Life airs January
4 - 6 on PBS. Check your local
listings. From PBS:
How can we all lead more
emotionally healthy and
fulfilling lives? What’s the
secret – and is there a secret –
to emotional and mental
well-being, and happiness,
according to those who study it
and those who experience it? It
turns out that connecting with
others may be a huge part of it.
But for many children and adults
who have been diagnosed with
Autism Spectrum Disorders –
including Asperger’s syndrome –
connecting with others can be a
constant challenge.
Getting Children To Say Thanks For Gifts
I
still wince at the memory of a
childhood Christmas where I hurt
my mother with a lack of
gratitude.
I’d asked for a pair of walkie
talkees from the Montgomery Ward
catalog. When I opened my
present, I found a different
brand of walkie talkies from
Sears. They were bigger and not
as cool looking. I looked up at
my mother and said, "Couldn’t
you have gotten them from
Wards?" The joy drained from my
mother’s face, and I felt
wretched as she explained I
needed to be grateful for what I
was given. After recently being
diagnosed with Asperger
Syndrome, I can forgive my
childhood self a bit with the
knowledge that blurting out what
you’re thinking is a common
Asperger trait. Luckily, that
incident and others helped me
learn to resist saying the first
thing that popped into my mind.
If you have a child with
Asperger Syndrome and want to
avoid having a spontaneous
reaction hijack the fun from
your holiday gathering, here are
some steps you can take in
advance. By Dan Coulter
OR grad doesn't
let autism stop his
dream of authoring
novel
For 10 years Matthew MacNown had
a story in his head
that he always knew
would make
for a
good book. But his
autism sometimes
made it difficult
for him to translate
those thoughts onto
paper so his readers
could understand
them. None of that
stopped the
determined MacNown
and with a little
help from his family
and teachers, he was
able to put the pen
to paper and make
his vision a
reality. Now at the
age of 23, MacNown
has accomplished
something many his
age haven't —
written a book and
had it published.
A Powerful
Identity, a Vanishing Diagnosis
It is one of the most
intriguing labels in
psychiatry.
Children with
Asperger’s
syndrome, a
mild form of
autism,
are socially awkward and often
physically clumsy, but many are
verbal prodigies, speaking in
complex sentences at early ages,
reading newspapers fluently by
age 5 or 6 and acquiring
expertise in some preferred
topic — stegosaurs, clipper
ships, Interstate highways —
that will astonish adults and
bore their playmates to tears.
In recent years, this once
obscure diagnosis, given to more
than four times as many boys as
girls, has become increasingly
common. Much of the growing
prevalence of autism, which now
affects about 1 percent of
American children, according to
federal data, can be attributed
to Asperger’s and other mild
forms of the disorder. And
Asperger’s has exploded into
popular culture through books
and films depicting it as the
realm of brilliant nerds and
savant like geniuses.
Be Included in Autism Research
The Academic Autistic Spectrum
Partnership in Research and
Education (AASPIRE)
believes in research WITH
autistic adults, not just ABOUT
autistic adults. The AASPIRE
Gateway Project is an online
gateway to research that
fulfills AASPIRE's mission to
encourage the inclusion of
autistic adults in matters which
directly affect them; include
autistic adults as equal
partners in research about
autism; answer research
questions that are considered
relevant by the autistic
community; use research findings
to effect positive change for
people on the autistic spectrum.
Oregon
becomes one of 12 states to
cover all kids with health
insurance
The state turned away Stacey Babcock when she tried to
sign up her daughter for health
insurance five years ago. But
Babcock, 27, filled out a new
application last week with a
promise that this time the
Oregon Health Plan will find a
way to cover her 8-year-old
daughter, Keeley Lingley.
The assurance comes from Gov.
Ted
Kulongoski, who is scheduled to
sign a bill at 10:30 a.m. today
at Doernbecher Children's
Hospital in Portland extending
health coverage to about 80,000
uninsured children in Oregon.
New Support Group in Portland,
Oregon Focuses on Helping
Partners and Spouses of Adults
with Asperger Syndrome
Dr. Kathy Marshack, is
launching a new support group, "Asperger
Syndrome: Partners and
Family of
Adults with ASD," in Portland,
OR. In addition to providing a
safe, supportive place to share
their experiences, Dr. Marshack
sees this group as a forum to
learn more, through books, films
and guest speakers. -
Licensed psychologist, Dr. Kathy
Marshack, is launching a new
support group, "Asperger
Syndrome: Partners and Family of
Adults with ASD," in Portland,
OR. This is not a therapy group,
rather a place for people to
learn from others and to share
their story about the often
frustrating and isolating life
of loving an adult with Asperger
Syndrome Disorder (ASD).
In addition to providing therapy
to families dealing with ASD,
Dr. Marshack is the author of "Life
with a Partner or Spouse with
Asperger Syndrome: Going over
the Edge?" (Autism, Asperger
Publishing Co. 2009).
Marshack explains what motivated
her to start this group, "After
I posted the first chapter of my
new book on my website, I was
completely overwhelmed by the
huge response from people around
the world looking for guidance
and support on how to navigate a
relationship with a partner with
Asperger Syndrome."
Central Oregon
Autism Asperger Support Team (COAAST)
Meets on the 2nd Monday of every
month at St. Charles Hospital,
Bend, Oregon.
People with
Autism, Asperger’s, their
friends and family as well as
interested parties are all
invited to attend. Conference
Room B is immediately inside and
to the right of the main
entrance of the hospital. For
comments or questions, please
call Kristi Svendsen, CORIL at
388-8103.
NAMI's new Asperger's support group takes
off
Just a
little behind schedule, Polly Yarnell opened the meeting
with a small joke. "Given that this is an
Asperger's group, I'm sorry we did not get started at
exactly 2 o'clock," she said. Everyone in the room
understood she was referring to the insistence on
routine often exhibited by those with the syndrome.
About 25 attended the first meeting of NAMI's Asperger's
support group Jan. 10. The turnout was testimony to what
Yarnell already knew. As she told those gathered around
the conference room tables that Saturday afternoon, NAMIhad decided to add this group to their offerings after
an encounter their staff had had while doing outreach at
St. Vincent's hospital. A woman, with Asperger's,
said she'd been looking all over the Portland area for a
support group that would deal with the multiple
disorders that can accompany the syndrome. These include
depression, obsessive-compulsive rituals and anxiety.
"These things are not addressed anywhere," Yarnell said.
/ Portland, Oregon
GREAT
article for children, siblings, partner's and spouses
connected to AS
Growing up in an
Asperger Family
by Maxine Aston
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or
download as a PDF