B.R.A.S.S.

Bend Redmond Asperger Syndrome Support.  Home to the "new" planet syndrome.

 
 
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Autism art by Cher

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"The number of students identified with autism spectrum disorders continues to grow exponentially. "In Oregon, the only statewide measure of prevalence is the annually collected child count of students who are eligible for special education under the eligibility of autism. The most recent data (December 2007 Special Education Child Count) shows that there were 7,078 students with a primary eligibility of autism out of a total statewide school enrollment of 566,067 (October 1 2007 Average Daily Membership), or 1 in 80 students. However, the regulations defining the special education eligibility of autism are different from (and somewhat broader than) the medical definition of the ASDs set forth in the DSM IV-TR (2000 American Psychiatric Association), possibly affecting Oregon’s numbers compared to other states."

The increase in ASD's prevalence is systemic across the entire United States and should be a urgent public health concern. The majority of the increase is attributed to young children and does not take in to consideration  those placed in private, home, residential or other placements. Nor does it take in count or recognize the adult population.  The increasing prevalence time trend provides additional evidence that  frequency is, and has been, increasing in the United States. The frequency of autism spectrum disorders now surpasses that of all types of cancer combined." A must read is:  US Department of Education Data on "Autism" Are Not Reliable for Tracking Autism Prevalence  by James R. Laidler, MD.  From the Department of Biology, Portland State University, Portland, Oregon.  Why are Oregon stats so high?  Are we better at diagnosing or is  mercury,  vaccinations, environmental factors or genetics a concern in Oregon?  Should Oregon families  be worried?

B.R.A.S.S.  is a support group for families with Asperger Syndrome in Central Oregon.  This site is dedicated to "all" families in all parts of the world and their loved one's "with" AS. 

"We might not always agree, ...but together we will make a difference."

 

 

New Definition of Autism May Exclude Many, Study Suggests
Proposed changes in the definition of autism would sharply reduce the skyrocketing rate at which the disorder is diagnosed and may make it harder for many people who would no longer meet the criteria to get health, educational and social services, a new analysis suggests. 

A Specialists’ Debate on Autism Has Many Worried Observers
A debate among medical professionals over how to define autism has spilled over into the public domain, stirring anger and fear among many parents and advocates of those with the neurological disorder, even as some argue that the diagnosis has been too loosely applied.
By Amy Harmon

A Message from GRASP
GRASP responds to the proposed changes in the DMS-V regarding morphing Asperger Syndrome and other labels under one umbrella titled, “Autism Spectrum Disorders”. What does this mean to you and your family in terms of services and diagnosis, and what can YOU do?

 

Girls on the Spectrum: Q&A with the Author of Aspergirls

Is Asperger syndrome really less common in girls and women, or are females just better than males at masking autistic symptoms?
 

Navigating Love and Autism
By Amy Harmon/NY Times
“Love on the Spectrum: Jack Robison and Kirsten Lindsmith, two college students living in Greenfield, Mass., discuss how autism affects their lives and relationship”.
Video

 

 

Discovering Autism / LA Times

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·         Autism hidden in plain sight / As more children are diagnosed with autism, researchunreconized cases of the disorder in adults. The search for the missing millions is just beginning.

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·         An epidemic of disease or of discovery? / Autism rates have increased twentyfold in a generation, stirring parents' deepest fears and prompting a search for answers. But what if the upsurge is not what it appears to be?

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·         Warrior parents fare best in securing autism services / Public spending on children with autism in California varies greatly by race and class. A major reason: Not all families have the means to battle for coveted assistance.

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·         Families cling to hope of autism 'recovery' / An autism treatment called applied behavior analysis, or ABA, has wide support and has grown into a profitable business. It has its limits, though, and there are gaps in the science.

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·         Finding traces of autism in earlier eras / As more children are diagnosed with autism, researchers are trying to find unrecognized cases of the disorder in adults. The search for the missing millions is just beginning.

 

Pretending to be normal: A photo story of Asperger’s Syndrome

Catching the Snowflake: A photo story of Asperger’s Syndrome (Part one)

“The Comfort of Acceptance.”  (Part two)

 

LOVE AND CRITICISM

By Dan Coulter

Does your child know you believe in him, even when you’re correcting him? Without meaning to, many of us give our children with Asperger Syndrome reason to question their worth in our eyes.

Comedian Jeff Dunham, who does not have Asperger Syndrome, honed his ventriloquist act for years to get a spot on the Tonight Show with Johnny Carson. For comedians, this was the door to big-time success.

Asperger Syndrome: Alone by Choice?
By Dan Coulter
Does your child with Asperger Syndrome really want to be alone?
I have Asperger Syndrome, and I enjoyed being alone when I was little, mostly when I was in my own
world reading. But I also craved company and wanted to be with people.  I think a significant number of children with Asperger Syndrome who say they want to be by themselves are creating a protective cocoon. They don’t really always want to be alone, they just prefer it to being teased or ignored.
 

Vaccines and autism: a new scientific review - CBS News
For all those who've declared the autism-vaccine debate over - a new scientific review begs to differ. It considers a host of peer-reviewed, published theories that show possible connections between vaccines and autism. The article in the Journal of Immunotoxicology is entitled "Theoretical aspects of autism: Causes--A review." The author is Helen Ratajczak, surprisingly herself a former senior scientist at a pharmaceutical firm. Ratajczak did what nobody else apparently has bothered to do: she reviewed the body of published science since autism was first described in 1943. Not just one theory suggested by research such as the role of MMR shots, or the mercury preservative thimerosal; but all of them.

Temple Grandin: Understanding autism
In the world of autism and autism research, there is no one of greater stature than Temple Grandin. As Lesley Stahl says in this week's Overtime Correspondent Candid, "She's one of those rare people with autism who can explain autism. She's a sort of interpreter of autism for the rest of us." For
parents of autistic children, for scientists who study autism, for teachers and caregivers who work with autistic children and adults, Grandin's insights have been groundbreaking and immeasurably helpful.
 

83 Cases of Autism Associated with Childhood Vaccine Injury Compensated in Federal Vaccine Court
Government program has been quietly paying awards to vaccine-injured children with autism for two decades but continues to deny vaccine-autism link. Safe Minds calls for immediate Congressional investigations. Press release; Press Conference; Findings published in Pace Environmental Law Review

 "How to Be a Sister: A Love Story with a Touch
of Autism,"

Eileen Garvin, author will appear at our stores May 5 and 6 to speak about her
book and her experiences as the sister of a person with autism. Eileen's
book tells the story of her efforts to re-connect as adults with her
sister Margaret, who was diagnosed with severe autism at age three. This
memoir of their adult relationship is also peppered with stories from
their shared childhood. Eileen will visit our store in Sisters on Friday, May 6 at 6:30 pm.
The address is 252 W Hood St, and our phone number is 541-549-0866.
Eileen will also visit our store in Redmond on Saturday, May 7 at 6:30
pm. The address is 422 SW 6th St, and our phone number in Redmond is
541-526-1491  Redmond; Sisters

C.B. v. GARDEN GROVE UNIFIED SCHOOL DISTRICT / 9th Circuit
After the Garden Grove Unified School District (“District”) repeatedly failed to provide a free appropriate public education to student C.B., as required by the Individuals with Disabilities in Education Act (“IDEA”), 20 U.S.C. §§ 1400-1482, his aunt and guardian (“Guardian”) enrolled C.B. in a nonpublic program, the Reading and Language Center (“Center”). Guardian sought reimbursement for the full cost of sending C.B. to the Center. An administrative law judge (“ALJ”) found that C.B. received significant educational benefits from attending the Center. But, because the ALJ found that the Center did not
meet all of C.B.’s educational needs, he awarded only half of the reimbursement sought. Guardian filed this action, as a result of which the district court awarded full reimbursement. We affirm, because the statute does not require that a private school placement provide all services that a disabled student needs in order to permit full reimbursement. ...Read the descion 

 GREAT article for children, siblings, partner's and spouses connected to AS
Growing up in an Asperger Family
by Maxine Aston
View as HTML or download as a PDF

 

I Love Someone

  with Autism.   

  Doesn't Everyone?

 

  "Solving the Puzzle One Piece at a Time."

"To be nobody but yourself in a world which is doing its best night and day to make you like everybody else means to fight the hardest battle any human being can fight and never stop fighting." - E.E. Cummings

 

 

   

  "I know of nobody who is purely Autistic or purely neurotypical.  Even God had some Autistic moments, which is why the planets all spin."  ~ Jerry Newport

Send mail to opu@bendbroadband.com  with questions or comments about this web site.
Copyright © 2003-2012 Bend Redmond Asperger Syndrome Support

Updated 01/01/2012