From
AASPIRES
The Autism Society of Oregon (ASO) has
posted a survey which includes a box for comments at the end, and
several other areas asking about general satisfaction with the
organization.
The background is that ASO is an ASA branch which refuses to acknowledge
the inclusion of autistic people in their policy or on their board. This
organization tokenizes the people they are intended to serve by doing
things like wanting autistic people to design their fund raiser
T-Shirts, but at the same time refusing to even answer questions related
to the idea of including an autistic person on their board of directors.
ASO does things about us without us.
This survey gives an opportunity for self-advocates and advocates in
Oregon to make it clear that it is NOT OK to have an autism organization
that refuses to take direction on an administrative level from real
autistic people. I'm passing this along in hopes that you will pass it
to other advocates who believe as I do that there should be "Nothing
About Us Without Us," and who will make it clear in comments that ASO
needs to seriously consider the model of those ASA branches which do
include autistic people directly in their administration.
Survey information:
As the Autism Society of Oregon begins
planning for 2009, we'd like to hear from you about how we've done in
2008 and what you'd like us to do going forward. To this end, we've
created a simple on-line survey that will take you about 5 minutes to
complete. You can access the survey by going to this web link:
http://www.zoomerang.com/Survey/survey-intro.zgi?p=WEB228DUEY77ZZ
If you could complete this survey no later than Sunday, November 23rd,
we'd greatly appreciate it.
Dora Raymaker
Co-Director, Academic Autistic Spectrum Partnership in Research and
Education
http://aaspireproject.org
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"I know of nobody who is purely Autistic or purely neurotypical.
Even God had some Autistic moments, which is why the planets all spin."
~ Jerry Newport